Publications

Legal Pathways’ founder Jasper Bovenberg has published in Science, Nature Biotechnology, Nature Genetics, European Journal of Health Law, The Netherlands Journal of Health Law, European Journal of Human Genetics, British Medical Journal and Project Syndicate. As adviser to the Dutch Association of Lawyers, he authored the ‘Preadvies’ for the Dutch government on Human Biotechnology and the Law: the Antoni van Leeuwenhoek Right: a proposal for a new constitutional right to pursue life. Bovenberg is the author of Property Rights in Blood, Genes & Data: Naturally Yours? (Brill 2006).

Jasper Bovenberg, David Peloquin, Barbara Bierer, Mark Barnes, Bartha Maria Knoppers, How to fix the GDPR’s frustration of global biomedical research, Science, Volume 370, Issue 6512, pp. 40-42, 02 Oct 2020.

Jasper A. Bovenberg, Bartha Maria Knoppers, Embryos, Justice and Personal Responsibility, Project Syndicate, Nov. 29, 2018.

Bovenberg, J.A. & Almeida, M., Patients vs Myriad or the GDPR vs the EU Database Right, European Journal of Human Genetics, Volume 26, Issue 9, September 2018.

Dove, E., Townend, D., Meslin, E., Bobrow, M., Littler, K., Nicol, D., De Vries, J., Junker, A., Garattini, C., Bovenberg, J.A., Shabani, M., Levesque,E., Knoppers, B., Ethics review of international data-intensive research, Science 2016; 351(6280): 1399-1400.

Bovenberg, J.A, Knoppers, B.M., Hveem, K., De Hoogh, K de, Hansell, A, Don’t Take It Personal– EU legal aspects of procuring and protecting Environmental Exposure Data in Population Biobanks through the use of a Geo-Information Systems Toolkit, Journal of Biopreservation and Biobanking, 2016 Jun;14(3):217-23. doi: 10.1089/bio.2016.0007. Epub 2016 May 17.

Bovenberg, J.A., Kattenberg, M., Baselmans, B., Sinke, M., Hoekstra., R., Boomsma, D. Willemsen, G., Enhancing Biobank Participants’ Rights From Paper to Portal, ScriptEd, Vol 13, Issue 1, May 2016.

Jasper A. Bovenberg, Alexandra Henrion Caude, Judit Sándor, Patenting Immaculate Conception?, Project Syndicate, Mar 1, 2016.

Bovenberg, J.A, Knoppers, B.M., Hansell A, De Hoogh, K de, Exposing participants? Population biobanks go geo, in European Journal of Human Genetics, (2016) 24, 155–156; doi:10.1038/ejhg.2015.43; published online 25 March 2015.

Bovenberg, J.A, Knoppers, B.M., Hansell A, De Hoogh, Nature, nurture and exposure: Connecting biobank data with geographic data could yield public and individual health benefits, but risks to human rights need to be assessed, in EMBO Rep. 2015 Apr;16(4):404-6.

Francioli et al., Whole-genome sequence variation, population structure and demographic history of the Dutch population, Nature Genetics, 46,818–825(2014).

Bovenberg, J.A., ‘How to achieve ‘free movement of tissue’ in the EU research area’, in ‘Human Tissue Research’, Oxford University Press, 2011.

Bovenberg, J.A, ‘One sample, one share! A proposal to redress an inequity with equity’, in ‘Biobanks and Tissue Research. The Public, the Patient and the Regulation’, Springer Verlag 2011.

Bovenberg, Meulenkamp, Smets and Gevers, ‘Your Biobank, Your Doctor? The right to full disclosure of population biobank findings’, Journal of Society, Genomics and Policy, Vol 5, number 1 (April 2009).

Bovenberg, Meulenkamp, Smets and Gevers, ‘Biobank Research: Reporting Results to Individual Participants’, European Journal of Health Law 16 (2009) 229-247.

Bovenberg, J.A., ‘The ‘Antoni van Leeuwenhoek-right’: the case for a new constitutional right to pursue life and health’, preadvies Nederlandse Juristen Vereniging 2009 (Kluwer 2009).

Bovenberg, J.A., ‘Weefsel, Winst & Belasting’, Tijdschrift voor Gezondheidsrecht, 6 september 2008, pp.398-413.

Bovenberg, ‘Legal Pathways for Cross Border Research’, in European Journal of Human Genetics, January 2007.

Bovenberg, J.A.,’Whose Tissue is it Anyway?’ Nature Biotechnology, Vol. 37, August 2005.

Bovenberg, J.A., ‘Blood, Sweat and Grants: Honest Jim and the European Database-right’, Journal of Genomics, Policy and Society, Vol. 1 No.2  (2005) ISSN:1746-5354.

Bovenberg, J.A., ‘Mining the Common Heritage of our DNA, lessons learned from Grotius and Pardo’, Duke Journal of Law and Technology, Spring 2006.

Bovenberg, J.A., ‘Towards an International Framework for Biobanks: a Status Aparte for Genetic Data? Special Issue of the Journal of Critical Public Health, Spring 2006.

Bovenberg, J.A., ‘Lessen uit het Buitenland voor een Algemene Biobank in Nederland’, Tijdschrift voor Gezondheidsrecht, nr 5, August 2004.

Bovenberg, J.A., ‘Should Genomics Companies Set Up Database in Europe’, Nature Biotechnology, Vol 18, September 2000.

Kate, L.P. ten; Loeber, J.G.; Knijf, P. de; Bovenberg, J.A., ‘Trends in onze genen: hielprikkaarten bewaren voor onderzoek op lichaamsmateriaal’, Medisch Contact 60 (4 nov. 2005) 44, pp. 1767-1769.