Publications

Legal Pathways’ founder Jasper Bovenberg has published in Science, Nature Biotechnology, Nature Genetics, European Journal of Health Law, The Netherlands Journal of Health Law, European Journal of Human Genetics, British Medical Journal and Project Syndicate. As adviser to the Dutch Association of Lawyers, he authored the ‘Preadvies’ for the Dutch government on Human Biotechnology and the Law: the Antoni van Leeuwenhoek Right: a proposal for a new constitutional right to pursue life.  Bovenberg is the author of Property Rights in Blood, Genes & Data: Naturally Yours? (Brill 2006).

Selected Publications from joint research projects

Patients v. Myriad or GDPR Access Rights v. the European Database Right, European Journal of Human Genetics (Volume 26 Issue 9, September 2018) Bovenberg, J.A., Almeida, M.

Embryos, Justice, and Personal Responsibility, Project Syndicate, November 29, 2018, Jasper Bovenberg & B.M. Knoppers.

Ethics review of international data-intensive research, Science 2016;351(6280): 1399-1400. Dove, E., Townend, D., Meslin, E., Bobrow, M., Littler, K., Nicol, D., De Vries, J., Junker, A., Garattini, C., Bovenberg, J.A., Shabani, M.,Levesque,E., Knoppers, B.M.

My Biobank: enhancing Biobank Participants’ Rights From Paper to Portal, ScriptEd, Vol 13, Issue 1, May 2016, Bovenberg, J.A., Kattenberg, M., Baselmans, B., Sinke, M., Hoekstra., R., Boomsma, D. Willemsen, G.

Don’t Take It Personal – EU legal aspects of procuring and protecting Environmental Exposure Data in Population Biobanks through the use of a Geo-Information SystemsToolkit, Journal of Biopreservation and Biobanking, Vol 14, 217-223, 2016, Bovenberg, J.A, Knoppers, B.M., Hveem, K., De Hoogh, K de, Hansell, A.

Exposing participants? Population biobanks go geo, European Journal of Human Genetics, (2016) 24, 155–156; doi:10.1038/ejhg.2015.43; published online 25 March 2015, Bovenberg, J.A, Knoppers, B.M., Hansell A, De Hoogh, K de.

Nature, nurture and exposure: connecting biobank data with geographic data could yield public and individual health benefits, but risks to human rights need to be assessed, EMBO Rep. 2015 Apr;16(4):404-6, Bovenberg, J.A, Knoppers, B.M., Hansell A, De Hoogh, K de.

Whole-genome sequence variation, population structure and demographic history of the Dutch population, Nature Genetics, 46,818–825(2014), Francioli et al.

How to achieve ‘free movement of tissue’ in the EU research area, in ‘Human Tissue Research’, Oxford University Press, 2011, Bovenberg, J.A.

Your Biobank, Your Doctor? The right to full disclosure of population biobank findings, Journal of Society, Genomics and Policy, Vol 5, number 1 (April 2009), Bovenberg, Meulenkamp, Smets and Gevers.

Biobank Research: Reporting Results to Individual Participants, European Journal of Health Law 16 (2009) 229-247, Bovenberg, Meulenkamp, Smets and Gevers.

Legal Pathways for Cross Border Research, European Journal of Human Genetics, January 2007, Bovenberg.

Whose Tissue is it Anyway? Nature Biotechnology, Vol. 37, August 2005, Bovenberg, J.A.

Should Genomics Companies Set Up Database in Europe, Nature Biotechnology, Vol 18, September 2000, Bovenberg, J.A.

Taxing Tissue, Project Syndicate, Dec 21, 2006, Jasper Bovenberg

Property Rights in Blood, Genes & Data: Naturally Yours? Doctorate thesis, Leiden, Martinus Nijhoff/Brill Publishers (2006).